Thyroid patients rebel

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The Wall Street Journal published an article this week about treatment for hypothyroidism. There are hints that endocrinologists may finally be starting to sit up and take notice of what their long-suffering patients have been telling them.

http://www.wsj.com/articles/doctors-hear-patients-calls-for-new-approaches-to-hypothyroidism-1460401118?mod=e2fb

 

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Jury Service

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I have just received my first ever jury summons.  At 63!  Why now??!!

Anyhow, there’s absolutely no way I would be able to cope so I have completed the form and whizzed it off saying:

“I have Antiphospholipid Syndrome, Sjögrens Syndrome and hypothyroidism.  These conditions cause chronic fatigue, joint and muscle pains, insomnia, depression and mood swings, ‘brain fog’/poor concentration/poor memory.  I need to sleep every afternoon to have enough energy to get through the day.  I would not be able to attend all day, because of pain and fatigue.”

I gather from a hypothyroid forum on FaceBook (Hypothyroid UK) that many people have successfully requested excusal on health grounds including hypothyroidism.  So I hope that works for me too.

So far, I haven’t submitted any supporting medical evidence.  But if there’s any quibble about an excusal I shall certainly get some!

Health benefits of choir singing

Being in a choir could help the body fight cancer by boosting the immune system

  • Singing reduces stress hormones, such as cortisol, and boosts mood
  • Reducing anxiety takes strain off immune system so it can fight disease
  • People with depression experienced the greatest mood improvement
  • The research suggests singing in a choir could help put cancer patients in the best possible position to receive treatment and stop tumours returning
All true! And highly recommended!

Developments in chronic fatigue research

Article in The Guardian, Monday 4 April.

Is chronic fatigue syndrome finally being taken seriously?

Interesting to note a possible autoimmune connection: “CFS is really an umbrella term for a whole variety of underlying illnesses – some psychological or due to anxiety-related exercise intolerance, but many others down to neurological impairment, energy-production impairment or even autoimmune dysfunction.”

Some patients have benefited from immunotherapy.  Also, “In some cases, something has damaged the mitochondria which provide energy for immune cells, brain cells and your muscle cells, and such patients can improve a lot from treatments such as a membrane lipid replacement.”

 

Hula hooping

I just got myself a hula hoop!  Haven’t tried this since (long-ago) childhood!

Not sure if I’ve got the right size. The first one I tried (from Sports Direct) was way too small and so impossible to keep up!

Checking online, I discovered that the recommended starter size is at least 1″ from floor to navel, but this is a good 2-3″ larger than that.  However, I do seem to be just about able to keep the thing airborne for a while.  In fact I probably stop more because of lack of stamina than lack of technique.

Certainly qualifies as cardiovascular exercise!  I’m quite rapidly puffed!  But it’s fun, and a challenge.  And I hope should eliminate a few extra steroid-induced pounds and inches!

 

NHS?

I rang the Brompton today to cancel an appointment on 18 May in the asthma clinic.  I’m going on holiday.  Fie – how very dare I attempt to have a life!  When do you think the next available appointment is?  One or two weeks later?  Nope!  24th August!  That’s over three months!!!

How can they call this a National Health SYSTEM?  National Health SCANDAL, more like.  The whole organisation should be sued for neglect.

 

Paper bags

Bring back paper bags, I say. Brown ones, white ones, brightly coloured ones, with handles, without handles, with twisted handles like rope, with flat paper handles, big ones, small ones, plain ones, fancy ones.

What’s wrong with paper bags? They can be strong – Americans routinely use them for their supermarket groceries. They can be reused. They can be recycled. Trees to source the paper can be sustainable. There may well be many other benefits, both commercial and environmental, that I’m unaware of.

They could be used in supermarkets instead of those silly, flimsy little plastic bags for collecting loose vegetables, and would have the advantage of not causing the toxic damage that comes with plastic packaging. And could also transport the bulk of the groceries back to the car (admittedly not so useful for pedestrian shoppers).

Plus, we wouldn’t have this new constant problem of forgetting to take our hideous, expensive fold-up nylon shopping bags with us everywhere. Men find that particularly irksome because they don’t (usually) have handbags.

Bring back paper bags!

Comments anyone? Suggestions?